About Me

Frisco, Texas, United States
I'm a middle-aged, bitter, divorced woman making every day a great day. I have two grown children.

Wednesday, December 5, 2012

Ichthyosis or scaly skin

Today's blog is a public service announcement about Ichthyosis. Growing up, I always had really dry itchy skin in the winter. My skin would flake and look kind of scaly. The skin on the back of my shins would get so dry sometimes that they would bleed. My mom took me to specialists and everyone told me the same thing. Slather on baby oil or Vaseline. Well that was pretty disgusting and didn't make it much better, but it made me really slippery.

If I was in the sun, my skin was completely normal. Thank goodness I live in Texas and it is sunny and warm most months. January and February were always rough months on my skin.

So fast forward a decade or two. I was 36 years old and living in Grapevine. I go see this 82-year old doctor for a physical. So while I was there, I thought I'd ask one more doctor about my skin. He looked at me and said "You have Ichthyosis." WTH? 

Well that was a huge turning point in my life..,.well between that and the Internet. I came home and Googled Ichthyosis. For years, not one doctor diagnosed me and this is a genetic thing that affects 1 in 250 people. That is pretty dang common. How could none of these doctors ever heard of it?

Ichthyosis Vulgaris is one of the more commonly seen types of ichthyosis. Sometimes called Common Ichthyosis. It appears in approximately 1 in 250 individuals. Ichthyosis vulgaris often goes undiagnosed because people who have it think they have simple “dry skin” and never seek treatment.

For the past decade, I have been using a couple of different lotions that make my skin look and feel like normal even in the winter. I have to use lotion that has alpha hydroxy or lactic acids. I prefer Dermal Therapy, but you have to order it from Canada which can take a while to ship. You can pick up AmLactin or Lac-Hydrin Five at Target or CVS. At Target, they keep it behind the pharmacy counter, but no prescription is needed. I believe these lotions are also used commonly for diabetics. Market Street also keeps some generic alpha hydroxy lotions behind the pharmacy counter that are a little less expensive.

Dermal Therapy with Alpha Hydroxy

I also hear using Voda soap or soap with Shea butter is helpful, but I have not tried it since the lotions seem to work just fine.

In addition to just dry scaly skin, this condition causes you to not sweat which makes you overheat. Seriously, I can do an hour-long cycle class and barely begin to perspire.

 Itchyosis FIRST

9 comments:

  1. Hey there
    I also have Icthyosis but live in Australia. My form is different to yours.
    You look fantastic in your profile picture - and what a beautiful sunset.

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    1. I'm just glad to know that others exist. LOL. I thought I was the only one.

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  2. Hi...I m having the same problem...any idea is the dermal therapy online store deliver their products to Malaysia?how long u receive your stuff after purchase? Thanks

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    1. It takes 2-4 weeks just to get it in the United States. I would see if you can get Amlactin. They changed the formula so it is not as stinky as it used to be.

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  3. If these products work for me then it will change my life forever! I will finally be able to show my legs in public. For 34 years I never knew the name of the condition; just that it was a horrible abnormality. I bought some Amlactin from Walmart, and ordered the Dermal Therapy lotion online a few minutes ago. Still searching for the proper voda soap.

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    Replies
    1. I hope they work for you! They have done wonders for me. You also have to take warm baths and exfoliate your skin.

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  4. This comment has been removed by the author.

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  5. I just ordered the lotion for the very first time. I've been looking for a lotion that will help for over 20 years! I had to do my own research because I had the very same problem you did, no doctor ever considered that it might be ichthyosis! While I don't recommend this skin disease on anyone, I'm thankful I am not alone! I want to try the soap, but I think I'll see how the lotion goes first!

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  6. As of now, there is no known cure for this condition. Herbal Treatment for Ichthyosis with coconut oil is done to manage and control the symptoms.

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